Special Studies

 

WTC- CAncer Risk Epidemiology Study (WTC-CARES)

WTC logo 2

 The New Jersey State Cancer Registry (NJSCR) is collaborating with the Rutgers Environmental and Occupational Health Sciences Institute to learn about the possible differences in risk factors for head and neck cancer between people who were and were not at the World Trade Center disaster. Eligible participants will be asked to complete a one-time survey over the phone or via secure web link. The survey is offered in both English and Spanish.

Funding Source: Centers for Disease Control and Prevention  

 

Forteo Post Approval Surveillance Study: Case Series

This study, conducted by RTI Health Solutions on behalf of Eli Lilly and Company, is investigating the safety of the osteoporosis drug, Forteo. The objectives for this study are to learn more about factors that may be related to the development of osteosarcoma or similar cancers in adult and to monitor for Forteo exposures in adult osteosarcoma patients.

Funding Source: RTI Health Solutions

 

Medullary Thyroid Carcinoma Surveillance Study: a Case-Series Registry

The Medullary Thyroid Carcinoma Surveillance Study is being conducted by the New Jersey State Cancer Registry (NJSCR) in collaboration with United BioSource Corporation to identify possible risk factors for developing medullary thyroid cancer (MTC), including history of treatment with liraglutide, a prescription medicine for type 2 diabetes. This study is taking place in more than 20 states across the country and involves a telephone interview with adults who have been diagnosed with MTC.

Funding source: United BioSource Corporation

 

Women's Circle of Health Study

womens circle

The Women’s Circle of Health study is a collaboration of several institutions, including the Rutgers Cancer Institute of New Jersey, Roswell Park Cancer Institute, the New Jersey Department of Health, Rutgers School of Public Health, and Mount Sinai School of Medicine. The study aims to evaluate factors explaining the earlier age at diagnosis and the more aggressive nature of breast cancer in African-American women, compared to Caucasian women. Participants are asked to complete an interview, which includes answering questions regarding demographic, medical, reproductive, lifestyle and diet histories, measuring body size such as weight, height, waist and hip circumferences, providing a saliva sample, and filling out a questionnaire about usual dietary intake.

Source: National Institutes of Health(NIH) - National Cancer Institute

 

Sun Protection Among Families Coping With Early Onset Melanoma: A Pilot Study

The New Jersey State Cancer Registry (NJSCR) is collaborating with Rutgers Cancer Institute of Jersey on a study about the experiences of individuals in different communities who have been diagnosed with Melanoma. The purpose of this study is to learn about families’ sun protection habits, and to examine the level of communication between patients with melanoma (diagnosed before the age of 45) with their family members in regards to their sun protection and skin self-examination (SSE) practices. Eligible individuals with be asked to complete surveys and participate in a Facebook intervention group.

Funding source: Rutgers Cancer Institute of New Jersey

 

Peer Mentoring to Promote Follow-Up Care Self-Management for Adolescent and Young Adult (AYA) Childhood Cancer Survivors

The New Jersey State Cancer Registry (NJSCR) is collaborating with researchers at the Rutgers Cancer Institute of New Jersey on a study of young adult survivors of childhood cancer. The goal of the study is to develop and test a peer mentoring program to help young adult survivors of childhood cancer aged 18-25 improve their self-management skills for long-term follow-up care. Eligible individuals have been diagnosed with any type of invasive cancer, and were between the ages of 10 and 20 at the time of diagnosis. Eligible participants will be randomized to either enroll in a peer mentoring program or receive intervention materials by email or postal mail.

Funding Source: Rutgers Cancer Institute of New Jersey

 

Case Investigation of Cervical Cancer (CICC)

The New Jersey State Cancer Registry (NJSCR) is collaborating with investigators at Battelle Memorial Institute, the Centers for Disease Control and Prevention, and the state cancer registries in Louisiana and Michigan on the CICC study. The purpose of this study is to better understand the screening and follow-up experiences of women, prior to being diagnosed with cervical cancer. Eligible participants will be asked to complete one survey as well as an optional request to release medical records (for this study only). The survey will be offered in both English and Spanish.

Funding Source: Centers for Disease Control and Prevention

 

Assessing Cancer Survivors’ Willingness to Participate in Research Studies

The New Jersey State Cancer Registry is collaborating with the Surveillance, Epidemiology, and End Results Program of the National Cancer Institute to measure cancer survivors’ willingness to participate in various types of research to support investigations into improving clinical cancer outcomes. Eligible individuals will be asked to complete a survey. An individual may complete the survey either on paper in English or Spanish, over the telephone in English or Spanish, or on the web in English.

Funding Source: National Cancer Institute

 

Survivorship Care Experiences of Oral Cancer Survivors in the SEER Registry: A Pilot Study

The New Jersey State Cancer Registry (NJSCR) is collaborating with Rutgers Cancer Institute of New Jersey on a study of survivorship of individuals diagnosed with oral and oropharyngeal cancers. The purpose of this study is to identify unmet support needs, get a better understanding of follow-up care experiences, and quality of life of oral and oropharyngeal cancer survivors. Eligible individuals may speak English and will be asked to complete a survey by mail.

Funding Source: Rutgers Cancer Institute of New Jersey, department funded

 

Improving Patient Access to Quality Cancer Treatment (IMPACT)

Impact

The Improving Patient Access to Quality Cancer Treatment (IMPACT) study is being conducted by the New Jersey State Cancer Registry (NJSCR) in conjunction with the Rutgers Cancer Institute of New Jersey. The aim of the study is to improve understanding of patients’ access to quality cancer care in the State of New Jersey and to learn more about quality of life after a cancer diagnosis. Eligible individuals will be asked to complete a survey.

Funding source: Rutgers Cancer Institute of New Jersey
This study is closed to enrollment and is in the data analysis phase.

 

Epidemiologic Study of Hepatocellular Carcinoma

The purpose of the study is to investigate how dietary, physical activity and certain medical factors may cause liver cancer. New Jersey and Connecticut residents newly diagnosed with hepatocellular cancer are eligible for the study. Telephone interviews are conducted to collect information on demographics, physical activity, medical history and lifestyle factors. Information on dietary habits are collected through food frequency questionnaires. Saliva samples are collected for genetic testing related to immune and other cell functions, and for analysis of hepatitis B and hepatitis C virus infections.

Source: NIH (National Institutes of Health) - National Cancer Institute
This study is closed to enrollment and is in the data analysis phase.

 

African American Cancer Epidemiology Study (AACES)

African American Cancer epi study
http://www.cancer.duke.edu/aaces/

The New Jersey State Cancer Registry (NJSCR) is collaborating with researchers at Duke University, in addition to sites in North Carolina, South Carolina, Georgia, Alabama, New Orleans, Ohio, Illinois and Detroit on this study of ovarian cancers in African-American women. The purpose of this study is to gather information on ovarian cancer risk factors (including genetics), treatments and outcomes in African-American women. Eligible individuals have been newly diagnosed with an invasive ovarian cancer and identify as African-American. Women who decide to participate will have a telephone interview, complete a diet survey by mail, and provide a saliva or blood sample (optional).

Funding Source: NIH (National Institutes of Health) - National Cancer Institute
This study is closed to enrollment and is in the data analysis phase.

 

Measuring Your Health (MY-Health): Validation Study of Health Outcomes Measures
“MY-Health Study”

my health logo
http://www.nihpromis.org/about/abouthome

The New Jersey State Cancer Registry (NJSCR) is collaborating with Georgetown University on a study to validate the PROMIS (Patient Reported Outcomes Measurement Information System) measures in cancer patients. The purpose of this study is to measure health, well-being, physical and emotional functions, demographic information and self-reported disease severity/status and treatment. Eligible individuals are asked to complete an initial survey, a follow-up survey 6 months after the first and an optional request to release medical records (for this study only). This study is currently in the data analysis phase.

Source: National Institutes of Health(NIH) - National Cancer Institute

 

Patterns of Care/Quality of Care Study
http://appliedresearch.cancer.gov/poc/

The Patterns of Care/Quality of Care Study is part of the National Cancer Institute’s effort to document and verify types of treatment that patients are receiving for specific types of cancer in different geographic areas of the United States. Each year the study reviews different cancer sites.

Funding Source: National Cancer Institute / SEER Rapid Response Study

 

Comparative Effectiveness Analysis of Surgery and Radiation (CEASAR) for Localized Prostate Cancer

ceaser studay
www.ceasarprostate.org

The New Jersey State Cancer Registry (NJSCR) is collaborating with Vanderbilt University to conduct the CEASAR study. The goal of the study is to compare the effectiveness of various therapies for localized prostate cancer in terms of patient-reported outcomes, side effects, quality of life, and complications of treatment. By figuring out what treatments "work best, in which patients and in whose hands", it will help men with prostate cancer make better decisions regarding their care. The first phase of the study includes a baseline survey, a six-month follow-up survey, and a twelve-month follow-up survey. The second phase of the study includes a three-year follow-up survey, and a five-year follow-up survey.

Funding source: Patient-Centered Outcomes Research Institute

This study is closed to enrollment and is in the data analysis phase.

 

Last Reviewed: 11/20/2017