How NJSCR obtains cases
New Jersey regulations require the reporting of all newly diagnosed
cancer cases to the NJSCR within six months of diagnosis. Hospitals,
physicians, ambulatory care facilities, radiation treatment facilities
and private laboratories are required to report cancer cases. Over
the years the legislation has been strengthened to: (1) require electronic
reporting, (2) require abstracting by certified tumor registrars and
(3) impose penalties for late or incomplete cancer reporting. Reporting
agreements also are maintained with bordering states. See the Cancer Registry Statute [pdf 255K]
Why collect cancer cases?
The Registry is an important source of information for health
care providers, public health officials, and administrators. This information
is widely used by clinicians, scientists, and researchers. Data on cancer
patterns in the population can be very useful for preventing and controlling
cancer and improving treatment and patient care. The data are used to
respond to New Jersey residents on cancer issues and concerns. Also,
the incidence rates in New Jersey are shared and compared with other
states and the nation. The data collected by the NJSCR can be useful
for describing cancer patterns in the population, discovering causes
of cancer, planning programs for people affected with cancer, and other
related research. See our Data, Statistics, & Reports and Research Publications
Early detection programs, such as for cervical, breast,
and colon cancers, use these data to plan screening services. Early
detection is more likely to improve survival. Health care providers
use these data for planning and researchers use these data for
studying ways to increase survival and identify risk factors. The
Registry also facilitates professional education and public education.
Reportable types of cancer
All primary invasive and in situ neoplasms are reportable to the NJSCR,
except cervical cancer in situ diagnosed after 1995 and certain carcinomas
of the skin. Benign and borderline intracranial and Central Nervous
System tumors are also collected effective with cases diagnosed on
and after January 1, 2004.See the Cancer Registry Statute [pdf 255K]
is collected by the NJSCR?
The information collected by the NJSCR includes very detailed
information about each cancer case. These data profile each patient including
and medical information on each cancer diagnosis (such as the anatomic
site, histological type, stage of disease and treatment). All patients
are followed annually and vital status is recorded. For deceased cases,
the underlying cause of death is also included. The primary site, behavior,
grade, and histology of each cancer are coded according to the International
Classification of Disease for Oncology (ICD-O), 3rd edition. The NJSCR
follows the data standards promulgated by the Surveillance, Epidemiology,
and End Results (SEER) program and the North American Association of
Central Cancer Registries (NAACCR).
Data quality and completeness
Quality control is an integral part of the NJSCR. We review
and evaluate the quality of our data through edit programs, and re-abstracting
studies. We strive to improve data collection activities
through targeted training programs. NAACCR has awarded the NJSCR the
Gold Standard, the highest standard possible, for the quality of data
since the inception of this award several years ago. The criteria used
to judge the quality of the data are timeliness, completeness of cancer
case ascertainment, completeness of specific information on the cancer
cases, percent of death certificate only cases, percent of duplicate
cases, in addition to passing the data through a stringent edit program.
Completeness of reporting is estimated by comparing New Jersey and
U.S. incidence to mortality ratios for whites, standardized for age,
gender, and cancer site. The data used to generate these ratios are
the cancer incidence rates for all SEER registries combined. Using
these standard formulae, it is possible for the estimation of completeness
to be greater than 100%.
Are the cancer data confidential?
All information collected by the NJ Department of Health and Senior
Services are confidential under law. All reports which are issued,
including the reports available on this website, group data together
so that no individual can be identified. If there are less than five
persons in the same group (such as the same age, sex, year of diagnosis
and type of cancer) then the actual number is not revealed.
Requesting Follow Up Report from NJSCR
Beginning in 2015, follow up reports will be available by request from the NJSCR. The purpose of the report is to assist cancer registries with maintaining current and accurate follow up data. These reports will be available two times per year; in June and December. Hospital requests will be honored in date order by receipt of request, with priority given to hospitals with a scheduled CoC survey date. For instructions on how to request your report, please view this document [pdf 344k].