Health Topic: Epilepsy and Seizures

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Links

Patient Education, Community

  • www.epilepsy.com             
    Web page for both Epilepsy.com and national Epilepsy Foundation of America
  • www.efnj.com
    Epilepsy Foundation of New Jersey, which also links to Family Resource Network of NJ
  • www.aedpregnancyregistry.org        
    North American Antiepileptic Drug Pregnancy Registry: information for women about the effect of seizure medications on pregnancy, and opportunity to enroll in an on-going study collecting more information about this subject.
  • www.rarediseases.org
    National Organization for Rare Diseases, a patient-centered group with information about many rare conditions that can cause epilepsy
  • www.braintalkcommunities.org/forumdisplay.php/59-Epilepsy
    Online patient support groups for neurology
  • www.coping-with-epilepsy.com/ 
    A free forum for information sharing with other online members
  • http://faces.med.nyu.edu/ 
    Faces (Finding A Cure for Epilepsy and Seizures) funds epilepsy research and works to improve the quality of life for those affected by epilepsy and seizures
  • http://www.patientslikeme.com/
    Learn from others, connect with people with shared experiences, chart health over time and contribute to medical research
  • www.akfus.org 
    The Anita Kaufmann Foundation established in 2004 to educate the public about epilepsy and help eliminate the stigma associated with epilepsy and brain trauma
  • www.claytonshope.org 
    Clayton’s Hope Organization is a non-profit organization benefiting Epilepsy Reseasch
  • k94life.org
    Canine Partners for Life is a non-profit organization dedicated to training service dogs, home companion dogs and residential companion dogs
  • www.epilepsyfree.com/
    Epilepsy Free provides summer camp and college scholarships for persons with epilepsy and supports educational programs on epilepsy and seizure disorders for the public and health professionals.
  • lgsfoundation.org/
    LGS Foundation is dedicated to providing information on Lennox-Gastaut Syndrome (LGS) while raising funds to pursue research, services and programs for patients living with LGS and their families

Medical Professional Societies, Government Resources - Access to care guidelines, doctor referral sources and more patient education

State of New Jersey Agencies and Departments Related to Epilepsy and Seizures

SUDEP (Sudden Unexpected Death in Epilepsy) Resources