All New Jersey licensed health care providers are required by law to register children with autism to the Autism Registry. Parents can facilitate the registration process by informing their health care provider (such as their pediatrician, neurologist, or psychiatrist or other New Jersey licensed provider that cares for the child) of this law and requirement and by letting them know that they want their child registered. Parents can proactively work with their provider to complete the registration forms by providing them with as much information as possible.
Why would you want your child registered?
Over the last several years there has been an increase in the number of children diagnosed with autism. The need for services for these children is extensive and early identification of a child with autism and early intervention of the behaviors and symptoms associated with autism, improves later outcomes. The Autism Registry helps with this aspect by referring families to special child health case management services, who perform coordinated care and inform families of available resources, and to early intervention, if the child is under the age of 3.
How confidential is the Autism Registry?
We recognize the sensitivity of your information and respect the rights of all individuals with autism and their families. We take seriously our obligation to protect the privacy and confidentiality of individuals and we keep all personal information in a tightly secured location and give limited access to the information contained in the Autism Registry. All information produced from Autism Registry data, such as reports, data tables and so forth are done in aggregate, with no individuals identified whatsoever.
How will my child’s information be used?
Once your child is registered, a letter and informational pamphlets are sent to you notifying you that your child has been registered. To keep confidentiality, the letter does not contain your child’s diagnosis. In addition to a letter sent to you, information about your child is sent to the special child health case management unit within your county of residence. These case managers are available to serve you and your family by providing you with coordinated, family-centered resources. This service is free to you and is available to your child from birth through the age of 21. For more information, go to case management site. If your child is under the age of 3, the Autism Registry refers your child to early intervention services.
Here is a copy of a brochure [pdf 182k] that you can share with other parents or your provider.